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One Color

Children with Medical Disabilities Awareness Scarf

With every item purchased, 10% will be donated to Mary Therese Rose Fund

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No one is brave alone!

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ITEM HIGHLIGHTS

  • Beautiful Script "be brave" Pattern
  • Teal and White
  • Hand Wash Cold, Dry Flat
  • 100% Polyester
  • $3.40 is donated
Mary Therese Rose Crilly was born on January 28, 1998 at the Valley Hospital in Ridgewood, New Jersey. She was warmly welcomed by her parents, her sisters Gina and Alycia, and her brother Matty. A few days after her birth, Mary was diagnosed with a rare genetic disorder called Joubert Syndrome, which affects only a handful of children around the world.

Mary's case of Joubert Syndrome was extremely severe. The doctors at Valley have never before diagnosed a patient with the disease, and Mary's situation was one of the most complicated. Thus, their expectations were not high, and the doctors hoped she would live at most a few months. Mary and her family lived beyond such expectations, however, and for nearly five years celebrated Mary's inspirational life.

Joubert syndrome affects different parts of the brain. Because Mary's case of Joubert affected her cerebellum, she was unable to walk, talk, eat, or even breathe on her own. Also, she was blind in one eye and suffered from a serious liver condition. Despite all of her limitations, Mary was always joyful. Her brilliant blue eyes and breath-taking smile enriched people's hearts and souls.

Mary always lived her life to the fullest. The Crilly family never allowed her disability to interfere with, as quoted from the fund's brochure, "the joys of childhood". Mary went swimming, went on vacation, and even went horseback riding. She went on walks with her mom, sisters, brother, and her nurses almost every day. She also attended concerts, went apple picking, and even went on a few rides at the local carnival. Mary was always seen with a smile on her face as her family enabled her to enjoy her childhood.

Mary Therese Rose Crilly died on January 12, 2003, just weeks before her fifth birthday. It was with great sadness that her life ended, but with great comfort that she is still living through our hearts. Even in death, Mary's memory continues to inspire others each and every day.

The Mary Therese Rose Fund, established shortly after Mary's birth, is spreading the happiness that Mary had on earth to those children that could also "reclaim their joys of childhood". It is with great joy that Mary could spread such happiness, even after her death. As each child is able to enjoy the simple pleasures of childhood and life because of the fund, Mary's beautiful smile spreads from face to face. It is these smiles that will forever keep Mary's life a celebration of love, joy, hope, simplicity and happiness.
Our Forever Brave Infinity Scarf is a woven texture that is soft to the touch, made of 100% polyester. This light and airy scarf is perfect for both cold and warm weather, so you can show off your bravery year round. Our motto, "be brave" is repeated in a hand written script on one side of the infinity scarf. Bravelets accessories make a great gift for you or a loved one, and are a beautiful way to fundraise for your cause.

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Reviews

11 reviews

Purchased a scarf to support a cause I believe in, the scarf is absolutely beautiful and incredibly soft! Very happy with my purchase! :)

-Starbydar

from Ntb, nc

I bought this for a friend/client that just went thru breast cancer! She loved it and said it made her feel empowered!! Thank you for the great idea!

-Bambi

from ClevelsndOH

I bought the love Be Brave scarf and I love it! Wore it last night and got lots of compliments!

-MaryT

from Santa Cruz, CA

I bought this for my daughter Anna who has been so brave dealing with her 4 year old (Elsie) daughter's kidney cancer. The scarf is really pretty, and it is surrounding her with bravery.

-amata

from Hopkins, MN

I love that Bravelets products support so many causes. Their products are of good quality.

-LynNeup

from Pennsylvania

I bought the infinity scarf for my best friend and myself in celebration of our friend who lost her battle to chronic organ rejection. I am so thankful for her donor who gave us 2 extra years of her laugh and smile

-ALC21685

from Milwaukee, WI

Love the quality, message and committment to these organizations

-Coastiemama

from Michigan

This scarf is very pretty and very comfortable to wear.

-veraz1grl

from Concord, CA

From the presentation to the actual product, I was impressed. My Bravelet arrived in a satin bag with a beautiful quote from Winnie the Pooh.. I proudly wear it in memory of my beloved son and to honor those who have walked a similar path.

-MJakoblich

I love the idea of donating to a cause & being able to give a small gift with the donation card

-Fearna

from Raleigh, NC

NEED PURPLE! A friend has a brain tumor and her favorite color is purple. No other color will do!

-dawson7407

from Santa Clarita, CA

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