Team Lindsey Rose

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About this cause:

Lindsey Rose was a brave little girl that had Down syndrome and significant heart problems. But she lived a good life for 14 years, and spread joy to everyone she met. Until a rare, random disease quickly and viciously took her life...Two months from the first fever to death. Hemophagocytic Lymphohistiocytosis (HLH), a rare blood disease that is 100% fatal if not treated, and kills more quickly than most cancers. We are raising funds to promote awareness and support research, since this is considered an orphan disease and gets no traditional funding for research. We will do all we can to stop HLH, in memory of Lindsey Rose, 04/04/2001 - 12/22/2015.