Shwachman-Diamond Syndrome Foundation – Bravelets

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Shwachman-Diamond Syndrome Foundation

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About this cause:

SDSF is a national non-profit, patient advocacy organization for patients and families who have been diagnosed with Shwachman-Diamond syndrome. which is a rare, multisystemic, inherited bone marrow failure syndrome. Our goals are to advocate and support research toward a cure and improve medical managament of symptoms, as well as to link families for emotional support through family conferences and supply them with the most current medical information available. SDSF was founded in 1994 by Joan Mowery, a mother of an SDS patient.