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About this cause:Lymphangiomatosis (limf-an-jee-oh-mah-TOE-sis) is a disease in which normal tissues in the body are crowded out or replaced by abnormal lymphatic vessels. When the bones are involved it may be called Gorham's disease or Gorham-Stout disease (GSD). It can severely effect the bones, lungs, liver, kidneys, spleen, intestines and result in increased bacterial infections, bone loss and deformity, malnourishment, and respiratory and heart failure which can be fatal.
There is no standardized treatment for lymphangiomatosis and no cure. We are very excited that Bravelets is giving our patient community the opportunity to raise awareness about lymphangiomatosis and Gorham's and also helping to support the LGDA mission.
Weâ€™d love to see pictures you wearing your Bravelets jewelry! Take a photo of yourself wearing your Bravelets jewelry and send it us at firstname.lastname@example.org with your name, diagnosis, and location and we will post your photo on our facebook page (www.facebook.com/LGDAlliance).
For more information about lymphangiomatosis, Gorham's disease, and the LGDA, visit our website: www.lgdalliance.org