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About this cause:Our son Joseph was diagnosed with FOP in Sept. 2011
What is Fibrodysplasia Ossificans Progressiva (FOP)?
One of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
Genetic disease affecting 1 in 2 million people
No ethnic, racial, or gender patterns
800 confirmed cases across the globe
285 known cases in the United States