Jayne's Spinal CSF Leak Foundation Page – Bravelets

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Jayne's Spinal CSF Leak Foundation Page

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About this cause:

Spinal cerebrospinal fluid (CSF) leaks are an important and under-diagnosed cause of new daily persistent headache.

Cerebrospinal fluid (CSF) bathes and supports the brain and spinal cord. When the meningeal layers that hold CSF in around the brain and spinal cord have a defect, hole or tear, this results in a loss of CSF volume. This may result in a range of signs and symptoms, most often a positional headache that is worse when upright and improved when lying down. Many patients are quite disabled by their inability to be functional while upright. Rarely, this can be life-threatening. We seek to facilitate more timely access to appropriate diagnostics and treatments for those suffering with spinal CSF leaks.