Gwyneth's Fundraiser: Prader-Willi Syndrome (FPWR) – Bravelets

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Gwyneth's Fundraiser: Prader-Willi Syndrome (FPWR)

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About this cause:

Prader-Willi syndrome (PWS) is the #1 genetic cause of life threatening childhood obesity. PWS is a complex genetic disorder that occurs randomly and affects approximately 1 out of every 12,000 births. PWS is a life threatening medical disorder affecting: hormones, muscle strength, appetite, behavior, cognition and learning, temperature regulation, pain tolerance and sleep patterns. Behavior problems are common and worsened by an unrelenting, overriding physiological drive to eat. For someone with PWS, the feeling of fullness after eating is missing. The Foundation for Prader-Willi Research (FPWR) is composed of hundreds of parents, family members, researchers, and others who are interested in addressing the many issues related to PWS, including childhood obesity, developmental delay, psychiatric disorders, and autism spectrum disorders. The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder. By working together, we intend to free our loved ones from the burdens of PWS, allowing them to lead full and independent lives...we choose to believe this will occur. Thank you for your support!