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10% of purchases made will be donated to CCHS (Congenital Central Hypoventilation Syndrome) Learn more
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About this cause:My daughter has CCHS (Congenital Central Hypoventilation Syndrome) also known as Ondine's Curse. We need your help.
CCHS is incurable â€“ there is no medicine to treat, and the only treatment to date is mechanical ventilation. CCHS is an orphan disease with less than 1200 cases in the world. CCHS is considered too rare to fund and as such, many parents like myself, have started a grassrootsâ€™ campaign to raise money for research, support and education.
You can see one family's struggle as they learn to live with CCHS in the 2015 Oscar nominated short documentary "Our Curse"( http://www.nytimes.com/2015/02/02/opinion/our-curse.html?_r=2).
Please help us find a cure for CCHS by buying a beautiful piece of jewelry for yourself, friend, mom, sister, aunt, or even one of the menâ€™s pieces. ALL money raised goes directly to the CCHS cause.
Thank you so much. Give a breath â€“ your donation makes a difference!