On June 10th 2016 my families world came crashing down as my brother and his wife were told their oldest son would slowly lose all of his functioning, become bedridden, and eventually be taken from them all too soon from a horrible disease called Juvenile Batten Disease.
On October 10th 2016, they relived this horrible fate when they were told that their youngest son would also have to suffer through this monster of a disease.
My nephews Chris and Nick are only 10 and 7 and I often struggle with why this has happened to my family and how can I help. With so many doctors appointments, the medical expenses add up quickly. My goal is to help raise money to ease the burden of the rising medical costs my brother Jason and his wife Stephanie are experiencing. Please consider helping me raise awareness of Juvenile Batten Disease and help remind Chris, Nick, Jason and Stephanie to BE BRAVE.
For more information about Chris and Nick please go to www.mybrothersbattle.com
For more information about Juvenile Batten Disease go to bdsra.org