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Mary Therese Rose Fund

page started by: Laura Matos


For every item purchased, 10% will be donated to Mary Therese Rose Fund.

About this cause:

Mary Therese Rose Crilly was born on January 28, 1998 at the Valley Hospital in Ridgewood, New Jersey. She was warmly welcomed by her parents, her sisters Gina and Alycia, and her brother Matty. A few days after her birth, Mary was diagnosed with a rare genetic disorder called Joubert Syndrome, which affects only a handful of children around the world.

Mary's case of Joubert Syndrome was extremely severe. The doctors at Valley have never before diagnosed a patient with the disease, and Mary's situation was one of the most compli...

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