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Surviving after five organ transplant
Posted on November 20 2014
In addition to those, I also have dysautonomia, legal blindness, mitochondrial disease, long QT, osteoporosis, an MS like condition, severe neuropathy, among others. I have been through cardiac arrest six times. I am strong. I am brave. I am a winner and dedicated to win this fight for others and eliminate DTP for everyone in the future. No one in the US should starve to death when food is everywhere.
In 2001, at the age of 23, I founded G-PACT to help find a cure and provide a wide range of patient support services. We have since become the largest non-profit fighting these conditions and made a lot of progress towards awareness and a potential cure.
In spite of the challenges and days where I can't even get out of bed, I have voluntarily devoted my life to assisting patients and seeking out all resources possible to help find better treatment options and a cure. I am on disability, and we operate via Internet, phone, and e-mail. No one is paid for what we do. We are all patients dealing with the challenges of a serious illness, while fighting for others in spite of how difficult our days can be.
Please help us continue our work. The donated portion of your purchase goes 100% towards awareness, advocacy work, and maintaining operations and providing free educational and supportive services to all those affected by DTP.