Scleroderma Sucks! – Bravelets

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Scleroderma Sucks!

Posted on May 03 2015

Scleroderma Sucks!
In August of 2013, my mother was diagnosed with Scleroderma. Many people may ask what is Scleroderma, so here is a quick definition of the disease: Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. In other words, this causes the outside skin to tighten and in very rare cases it affects the connective tissue of the internal organs as well. My mother happens to be one of those rare cases. The biggest impact this disease has had is on her lungs and recently the heart and kidneys. She is now limited to the amount of physical activity she can do and her new best friend is a portable oxygen tank. And just when we thought life couldn't get any better, she was informed that she will be needing a lung transplant due to the spreading of nodules on her lungs (this makes it very difficult for her to breathe, as you need the muscles on the bottom of your lungs in order to breathe). So far with the use of oral medication, the doctor's have been able put the transplant at bay for just a little than originally expected.

Now, my mother has never liked being the "patient" as she has always been the one to care for other patients. She is the supervisor over TWO cancer offices in Waco, where she has been employed at for 15 years. She has always played a huge role in finding financial assistance for patients in need and has made a huge impact in her patients' lives. It has not been easy for my mother over the past few months, but she continues to push hard through each day even when she just wants to throw in the towel. My mother has done so much for so many people and I feel that since the table has been turned, it is only right that she is taken care of the same way she has cared for so many.

On the journey to getting her new set of lungs, she will require MANY doctor visits, medications, tests, and travel to make sure she remains "healthy" enough to eventually get the transplant & still be able to have somewhat of a normal life. Many of these appointments will be out of Waco so there will be alot of traveling and lodging expenses, on top of the growing medical expenses. We do not ask for sympathy or pitty, but do ask for support and encouragement throughout the journey she will soon face. It has definately been a roller coaster for us all but with love and support from our family and friends, we know that anything is possible.
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