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My story of becoming a Robot
Posted on February 09 2012
This was a crusing blow for me and everyone taking the journey with me. For someone who was “on track” this was derailing my goals and day to day living. Thankfully I was the first to start vbloging my attacks etc. on youtube in 2005 and to this day, after some years in a scooter then wheelchair, a machine installed in my abdomen and spine, and this past April DBS Deep Brain Stimulation (2 pacemakers and wires in my brain) I still keep videos.I am a junior member of the Dystonia Medical Research Foundation and a big part of my local DFW Support Group and found the ONLY thing dystonia had not taken was my sense of humor and my drive to help others. So, until I am much better (or cured:) ) I speak to schools, kids, groups, and “one on one” with the you tube audience about the good and the bad.I have been crushed or defeated or told no you will not by Dystonia every day, and every day I get up and try again and again.I would love to wear a bracelet and hopefully you can help spread more awareness with me by adding Dystonia.
Thank you for reading this:)www.shakeyamy.org (link to my youtube videos are on there)Love,