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My Fibro Story

Posted on January 13 2015

My Fibro Story
Thank you for taking the time out of your day for reading the complicated story of my life for the past few years...

About 3 years ago I could describe myself as a "normal", healthy 21 year old girl, working during the day and going out with friends by night. When all of a sudden I started having excruciating pain in my stomach almost every day, causing me to go to the ER, to just be given pain medications and told to go see a specialist. When I did go see a specialist for stomach problems I was just give heart burn medicine and told "hopefully this will help you" since the ER told me my appendix was inflamed, but not enough to remove. Mind you, I was still going to the ER at least twice a week for 6 months when they finally hospitalized me to run more tests to figure out what was going on. After an endoscopy and a colonoscopy, all they could tell me was that I had gastritis and then accused me of taking drugs to cause all these stomach "issues". Yet again I was just given heart burn medicine, even though I was still in excruciating pain and throwing up almost every day. I lost about 25 pounds in 6 months because I couldn't keep food down. This is also around the time all the muscles in my body started burning all the time, causing me to see a rheumotologist to see if I had some type of arthritis, but instead I was diagnosed with the age of this time I felt sick all the time, causing me to get fired from my job and my social life came to a complete stop.

By the next year, I was still having extreme stomach pain all the time and finally it was looking as though they were going to take my appendix out! But last minute the surgeon canceled the surgery because my appendix didn't look inflamed enough. After a long conversation, my mom and I convinced him to at least due an exploratory laproscopy, and by the end of the surgery he had removed my appendix. When I talked to him during my post-op he told me that I was lucky to get my appendix out when I did because it was about to burst. He told me, "I have been a surgeon for about 30 years, and you are the only case I have ever seen where the ultrasound and CT scan both show your appendix barely inflamed, but the scans were completely wrong"....

After getting my body poisoned for about 2 years from my inflamed appendix, I have a lot of residual health problems that have been costing me a lot of money in more surgeries, procedures, and injections. I have been diagnosed with endometriosis, and had to get a laproscopy to burn the tissue that was wrapped around my bladder. But even after that surgery, I still have terrible abdominal pain, and have been diagnosed recently with interstitial cystitis, and have began different medicines to try to counteract the excruciating pain, but nothing has helped so far.

Aside from my abdominal problems, I have had knee surgery to remove my plica that was stuck inside my knee cap, which hindered me from straightening my leg properly for 7 months, so they also had to perform a lateral release to make my knee be able to straighten out again. I have already gone through 7 months of physical therapy, but with having fibromyalgia it has been a very painful journey and I still have to walk with a cane because I do not have my sense of balance back in my leg.

My fibromyalgia, endometriosis, acid reflux, interstitial cystitis, and other health problems that may rise in the near future have cost me money, friendships, and have caused me extreme emotional issues. I am so thankful for my mom, best friend, and boyfriend that have stuck by my side through everything and have held my hand when things got extremely scary. I am still going to the ER about 3-4 times a month due to abdominal pain and extreme muscular pain, but I'm still thank for the life I have, and I'm hopeful that I still have a future in this mysterious path I am on.

Thank you again for reading my long story


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