Living with Cystic Fibrosis – Bravelets

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Living with Cystic Fibrosis

Posted on October 05 2012

At the tender age of 3 months I was diagnosed with the life ending disease Cystic Fibrosis. My first year was filled with never ending visits to the hospital in which my mom didn’t know if her daughter was coming home alive, or she would have to bury her. My doctors were constantly telling my mom that I wasn’t going to live to see my first birthday, then later after I proved them wrong it was my tenth.
Here I am thirty one years old happily married and a mother of two beautiful boys. Things were going great until last year when I woke up at one o’clock in the morning…..coughing up blood. Later I would find out that I now had Bronchiestasis. After many hours spent at my local hospital with inept doctors, to whom I had to constantly explain what it was that I had, I was finally transported to my CF doctor downstate. I spent a week away from my family, and friends. Thank GOD for the wonderful nurses, my husband, who was there every moment he could get away, and my boys who spent an hour on the phone with me every night before they would go to bed.
It is because of my wonderful family that I am BRAVE, and I wouldn’t be here or the person that I am today if it weren’t for them.
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