Liver Alone – Bravelets

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Liver Alone

Posted on July 24 2015

Liver Alone
Last October I suddenly woke in the middle of the night with extreme abdominal pain. After a few hours with no change I drove myself to the hospital. Once I was in the ER I was told I was having a gallbladder attack. Several days later with no change in pain I was back in the ER. This time they ordered a detailed ultrasound where masses were found on my liver. After CT Scans I was told that I have three giant cavernous Hemangiomas on my liver. The size of the largest hemangioma causes pain and inflammation on my right side that is quite painful. In January I had surgery to remove my gallbladder, which had flipped due to the expansion of my liver. In the future I will have surgery to remove the largest hemangioma and we hope that the next largest hemangioma never grows again, as it is situated around the main artery to my liver.

I have learned so much about my liver and what a liver does for your body since diagnosis. And, although my condition is congenital (I was born with the three bears!) I have learned a lot about the stigma attached to liver disease too. There is still so much to learn and there are so many things doctors do not know about what can cause things like Hemangiomas to grow. Hormones are the only known cause in growth patterns at this time.

I hope that through raising awareness of all liver diseases we can help educate and change the negative perceptions that go along with liver disease. We can find support in one another. Laugh at the poochy stomachs, cry at the scary unknown and share our stories together. Although I wouldn't wish this on myself (or anyone else!) I am proud to be a Liver Disease Warrior!
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