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Posted on September 14 2015
You see the thing about ALS is that your brain is fine. You're completely aware of what is happening to you. You become stuck inside a body whose nerves and muscles die one by one and there is absolutely nothing you can do about it. I have really vivid memories of things I saw my mom go through but what I will remember more than all the pain was her bravery.
For four years she lost everything. She lost her ability to walk and eventually needed a motorized wheelchair. She lost her ability to use her arms as well. Imagine how brave you have to be to watch everyone around you do things for you that you used to for yourself with no effort at all. Towards the end, she couldn't talk anymore either. I used to bend down close to her so she could whisper in my ear. To do that one more time and hear her whisper "I love you my baby" I would truly give absolutely anything.
The morning she died at the age of 52, she laid in her hospital bed in the same house she made a home and she took her last breath. She accepted that her destiny was God's plan and she was content in knowing that her time here on Earth was up. In honor of her 10th anniversary in Heaven, I ask that you remember to always be brave; when you want to give up and feel defeated, please remember her and the many people who suffer from horrible diseases like ALS.
My favorite quote has always been, "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." And it's so true. Life is about being brave. It's about continuing on even when all odds are against you. ALS took my mom and I miss her more than any words could truly express, but it taught met how to be strong and for that I am grateful. Thank you Mom for your strength. I can't believe it's almost double digits. I will wear my bracelet and think of you each day and push myself through by being brave.
Please consider purchasing a bracelet of your own and making a donation in honor of my mom, JoAnn Enders, the bravest person I will ever know.