How POTS changed me – Bravelets

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How POTS changed me

Posted on June 02 2017

How POTS changed me
I was an average teenage girl who loved sports, hanging out with friends and did well in school. About three years ago everything changed. I came home from school one day and I couldn't even make it to my bed before falling asleep. I slept for about 48 hours straight and my parents were worried sick. I was nauseas and slept constantly. I had friends who no longer had time for me. Doctors told me that I just needed therapy and that I was depressed. The only reason I was depressed was because I couldn't stay awake for more than a few hours. Over night, my life turned upside down.

After a few weeks I started getting dizzy all the time. I would pass out without any warning. I was constantly nauseas and in pain I was practically bedridden for a few months. I would hear my parents crying at night because they thought I was going to die.

One day I went to get blood drawn and I passed out twice. As I was getting in the car to go home, I passed out again. I fell out of the car and hit my head hard on the pavement. We finally went to see someone about an endoscopy. When the nurse took my blood pressure, she had a weird look on her face and told us about POTS. Around a month later I was diagnosed and started on midodrine. From there we figured out that I had a hole in my gallbladder as well as some other issues. I had surgery to remove my gallbladder which helped a lot. I still passed out all the time though. The midodrine helped but wasn't enough. I had chest pains so bad that I would scream and cry for hours on end.

I went to a two week treatment center for POTS in Dallas Texas which improved my life dramatically. I went from being in a wheelchair to doing gymnastics(my passion) within a week and a half of treatment. My pain levels decreased and I finally felt like I would be okay. After I finished treatment, I went home. Soon another episode hit and I passed out about 8 times one night. Fortunately I connected with a few other potsies who helped me through.

Eventually I met a doctor Farhad who changed my life. Since meeting him, I am back at school part time and I feel like I am starting to get my life back. I still have my ups and downs but I'm no longer stuck in bed. I haven't passed out in about 4 months which is amazing.

POTS is a difficult battle that I struggle with every day but thanks to some amazing people I met along the way, I'm learning to manage life with a chronic illness.
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