Hailey's Comments – Bravelets

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Hailey's Comments

Posted on November 05 2012

Hello, my name is Hailey and I am 6 years old and I live with Cystic Fibrosis. Many states conduct automatic testing on newborn children for Cystic Fibrosis (CF.) The state I was born in did not and unfortunately I was misdiagnosed for my first 3 years. After about 2 1/2 years of struggling with what my mommy believed to be a wrong diagnosis we moved to Pennsylvania and my mommy made an appointment with Children’s Hospital in Pittsburgh Pennsylvania. Within minutes of observing me and talking to mommy the doctors observed common symptoms such as a distended stomach, club fingers and toes, and asthmatic issues. We were told that these were classic symptoms of Cystic Fibrosis. More tests were conducted and confirmed this condition. Due to the delayed diagnosis my condition had worsened. Anyway you know what they say…Better late than never.I have decided that my purpose in life is to educate the public on the conditions, symptoms and day-to-day life in a child’s walk with this incurable disease. My mommy is helping me write my story. My mommy will help educate you on the disease of Cystic Fibrosis (CF) and I will tell you my day-to-day story. I love to draw pictures, paint and write letters so you will get to follow me on this journey… I hope to find other children with CF that will also share their stories. Please follow me as iFly in the face of Cystic Fibrosis.My Facebook: https://www.facebook.com/hailey.bristol.5My Blog: http://www.simplesite.com/haileyscomments/My E-Mail: haileyscomments@yahoo.com
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