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Charity's 99 Day Journey of Life

Posted on June 22 2016

Charity's 99 Day Journey of Life
Charity was a surprise baby! We knew by the end of our second trimester that she only had a 2 vessel umbilical cord and was small in size. We soon found out she had a heart condition. We agreed to the blood test to see if there were any genetic disorders. Her test results showed no disorders. We focused on how her heart would be repaired. Fully understanding that we may not know the true details of her heart until she was born and a better scan could be done. When Charity was born, the doctors had to work on her breathing as she was struggling. The next day, Charity was prepared for surgery but a Genetic Doctor saw her hands and was concerned that he was seeing a Trisomy Marker. Her first heart repair surgery was brought to a stop until the blood work was done. When the blood work came in, it did show that she was positive for Trisomy 18. Upon that news, the doctors no longer wanted to repair her heart. But, we didn't want to stop there. We sought a Care Meeting and debated our case. It was decided to go forward with the first heart repair surgery, with the understanding she could pass away during the surgery. We also understood this would not fully repair her heart as she would need a second surgery in the future. At three weeks old, Charity was brave and came through her heart surgery with complete success. Charity was able to go home at six weeks old. She lived a full, joyous eight weeks at home with her family. 99 days was her life span on this earth. As her parents, we have no regrets. The surgery was worth it as it gave us 11 additional weeks with her and it allowed us to love on her in the comforts of our home. Charity's Journey brought out bravery in all of us and we have no regrets! We hope our story can inspire other parents facing a Trisomy to be brave and love unconditionally. Every minute, every hour, every day, every week, every month is worth being brave for.