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CHARGE Syndrome

Posted on December 12 2012

Who is the bravest person you know? I nominate my son Parker Chen. He was born at 30 weeks, and diagnosed with CHARGE Syndrome. He has chronic lung disease, hearing loss, vision loss, balance issues, and had a trach for three years. Recently got his trach out Oct 10th, and has been thriving since he has been home since 2009. He spent 13 months in the NICU, PICU and rehab. He has overcome so many obstacles when doctors and specialists labelled him failure to thrive. He is my inspiration and reason for becoming the best mother and advocate for special needs children.