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Alpha 1 Antitrypsin Deficiency Condition
Posted on November 18 2014
I am joining in with other Alpha's, with this video, (My husband shot this video of me), in support of finding a cure for this life threatening condition.
Alpha-1 Antitrypsin Deficiency (Alpha-1) is an inherited condition that can cause severe lung disease in adults and liver disease at any age.
There are at least 100,000 people with Alpha-1 in the United States. But fewer than 10% have been diagnosed.
Alpha-1 is the most common known genetic risk factor for emphysema.
About 1 in every 2,500 Americans may have Alpha-1.
PLEASE Share this video in support of a cure.
As part of our “I am 1. Are you?” awareness campaign, we want you to record a video of yourself or an Alpha you love and post it on Facebook and/or other social media sites. Make sure to use the hashtag #AreYou1 and include a link to alpha-1foundation.org/awareness.
This is what I have. I was diagnosed 2 years ago a ZZ. And, I also have a porta cath in my chest and receive weekly infusions for the rest of my life. This is Alpha - 1 Awareness month. We Alpha's are all fighting this rarely diagnosed condition. WE NEED to find a CURE!!! I have 2 new grand babies and I got married last year, and have a son and a daughter that were diagnosed as MZ carriers, and family and friends. So, I have SO MUCH to live for!!! This takes its toll on me. sometimes more than other times.
I am not as strong as I use to be.
But, I WILL FIGHT this!!!
Please join our page and learn more about Alpha -1 Antitrypsin Deficiency disorder. https://www.facebook.com/o2seekers
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